Patient Leader Collaboration


Topic Replies Activity
Why is it so difficult to ASK family/friends for help when you really can't do things for awhile for yourself? 6 January 28, 2023
Period Health Education & Coaching 3 January 24, 2023
Patient Leaders Minneapolis/St. Paul!! 5 January 24, 2023
North Carolina Patients 8 January 19, 2023
Patient Advocacy 6 January 19, 2023
TMJ/TMJD & ICR Awareness 6 January 19, 2023
Encouragement Saturday: Open Your Eyes! 6 January 19, 2023
Is "weeping Eczema" a "Rare Condition"? Seems like I am not seeing much on this and I have developed it. 4 October 22, 2022
How to view completed activities 4 October 18, 2022
Do Not Be Afraid to SPEAK UP & SPEAK OUT! 35 August 23, 2022
Will we be seeing "New Activities" in the near future?! 4 August 3, 2022
You're in the checkout line and turn around to someone with no mask on.. What would you do? 22 August 3, 2022
Who is advocating for CCI? ( instability) 3 July 6, 2022
Fibromyalgia Research Survey 5 May 27, 2022
Chronic Illness Connections 3 March 19, 2022
Thursday Thoughts: If you could go back to when you were diagnosed what would you tell yourself? 38 December 28, 2021
From Asthma To Anaphylaxis: Food Allergy Symptoms 3 December 28, 2021
Share YOUR story! 5 December 28, 2021
Going Live on TikTok 4 December 28, 2021
Leveraging your niche 3 December 28, 2021
Genomic / Multi-Omic Data Generation & Crowdsourced Analysis for Rare Disease & Undiagnosed Patients 3 December 28, 2021
New PCOS Advocate Looking To Connect With Others! 4 December 28, 2021
Are you walking in your light? 5 December 28, 2021
New to being a Patient Advocate 3 December 28, 2021
“Unsubscribe” to the Ableist Society and join this Disability Rights Collaborations list! 5 December 28, 2021
Cannabis Based Therapies for Pain, Sleep, Anxiety, and Depression 6 December 28, 2021
What are some self-care practices you use for stress? 34 August 7, 2021
Trying to get back on track 3 December 28, 2021
Do you distance yourself from Energy Vampires? 3 December 28, 2021
Welcome Our Platform Moderator, Jade! 8 December 28, 2021