Topic Replies Activity
Patient Leader Bulletin Board

Are you looking for other Patient Leaders to help with a project? :raising_hand_man:t4:🙋🏼 Maybe you want to profile other’s stories on your blog or podcast, or perhaps you are working on a local event that you’d love …

63 September 9, 2021
Patient Leader Introductions!

Welcome! We’re so glad to have you here :slight_smile: You’re joining a community made up of the most inspiring people you’ll ever meet. Take a moment to introduce yourself. Let us know where you’re from, what you advo…

618 September 8, 2021
Valuing Your Expertise As A Patient Leader 137 September 24, 2021
What do you say to someone in your community who is struggling? 1 September 21, 2021
Humor for Patient Leaders 101 64 September 18, 2021
LinkedIn for Advocacy - Advice Needed 15 September 14, 2021
Going Live on TikTok 3 September 12, 2021
Congratulations to all nominees! When in August are the finalists announced? 4 September 11, 2021
Advocacy Collaborations? 4 September 10, 2021
How to resolve printer issue 1 September 10, 2021
How To Leverage Your Health Story | Media Pitches 106 September 9, 2021
Fall Risk The Musical 1 September 9, 2021
FTC Guidelines for Patient Leaders 26 September 9, 2021
Leveraging your niche 2 September 9, 2021
Roadrunner Email 1 September 3, 2021
Genomic / Multi-Omic Data Generation & Crowdsourced Analysis for Rare Disease & Undiagnosed Patients 2 September 2, 2021
Hope Clinical Research La 1 September 1, 2021
Photography 1 August 30, 2021
why my photo is not showing up? 6 August 29, 2021
New PCOS Advocate Looking To Connect With Others! 3 August 19, 2021
EARNING BADGES 4 August 18, 2021
Do Not Be Afraid to SPEAK UP & SPEAK OUT! 8 August 16, 2021
Legislative Advocacy for Beginners: Your Sixty Second Advocate Pitch 12 August 15, 2021
Best Practices for Engaging Your Community 59 August 15, 2021
How do you talk to a young one with your condition? 1 August 12, 2021
Can someone explain Badges & Badge Levels to me? 4 August 12, 2021
“Picture It!” Show off. 32 August 12, 2021
Are you walking in your light? 4 August 12, 2021
New to being a Patient Advocate 2 August 12, 2021
So I'm curious about this my fellow Patient Leaders... 13 August 12, 2021