Course Discussions


Topic Replies Activity
Patient Leader Introductions!

Welcome! We’re so glad to have you here :slight_smile: You’re joining a community made up of the most inspiring people you’ll ever meet. Take a moment to introduce yourself. Let us know where you’re from, what you advo…

490 October 26, 2020
About the Course Discussions category 1 April 23, 2019
Powerful Hashtag 9 October 22, 2020
Valuing Your Expertise As A Patient Leader 98 October 11, 2020
How do you keep a record of your health concerns? 2 June 20, 2020
hey now, lerning the ropes here. 2 June 20, 2020
Limb-Girdle Muscular Dystrophy Awareness Day 1 September 27, 2020
Dealing with anxiety during the COVID-19 pandemic 4 September 22, 2020
How have you been able to cope? 14 September 22, 2020
Best Practices for Engaging Your Community 54 September 17, 2020
I Am a Phenomenal Black, Disabled Woman 5 September 14, 2020
Humor for Patient Leaders 101 52 September 14, 2020
How To Leverage Your Health Story | Media Pitches 93 September 11, 2020
Legislative Advocacy for Beginners: Your Sixty Second Advocate Pitch 4 September 10, 2020
Social Media Engagement 6 September 10, 2020
Open Style Lab 4 September 1, 2020
Answers Site Challenge 17 August 31, 2020
Adaptive Fashion 10 August 28, 2020
From Deck to Skills: Preparing Your First Keynote 42 July 21, 2020
How do you describe what a Patient Leader and Advocacy is to someone who asks that is unfamiliar? 6 August 12, 2020
Girls Chronically Rock Podcast 4 August 4, 2020
Grieving the person I once was 11 July 23, 2020
COVID-19 PANDEMIC 3 July 20, 2020
Healing story Collaborative 3 July 18, 2020
Stop Telling Advocates How To Advocate! You Are Being Ableist! 4 July 16, 2020
Traveling with an invisible illness 16 July 10, 2020
New Here, Hello 2 July 10, 2020
Muscular Dystrophy 3 July 7, 2020
Hi everyone, a bit about me 3 July 1, 2020
All You Need to Know About Patient Engagement 2 April 21, 2020